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brianiac (4158)

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Journal of brianiac (4158)

Tuesday March 30, 2004
04:30 PM

Shot #3

My wife Angela gave me my shot this time. The side-effects were still bad overnight, but more manageable and passed more quickly. I haven't had to take any meds for my heniated disc in the past several days, either.

I suspect I am starting to get a handle on my overall stress level.

Monday March 22, 2004
11:14 AM

Second shot

I performed my second shot on Saturday night (well, technically, it was a few minutes into Sunday). The flu symptoms did not last quite as long, maybe until 5pm Sunday. Working myself up to do it, despite my aversion to needles, took far too long. I think I may have my wife Angela do it next week.

On the plus side, I was able to get a few things done on my personal project this weekend.

Saturday March 06, 2004
07:22 PM

A Different MS

Nine days ago I was diagnosed with the relapsing/remitting course of MS. I am currently about 5 weeks into what should be about a two-month episode that has meant double-vision and nystagmus, dizziness, some numbness and paralysis of my face and tongue, and some (as WAI might label it) cognitive impairment.

It turns out that the mysterious phase of similar symptoms (plus some aphasia) I experienced in 1996 was my first "exacerbation".

To be sure, a period of eight years between my first and second attacks is a very good sign, and my symptoms have not included blindness or incontinence, but not being able to see or think clearly is quite disturbing all the same. I find that I, quite uncharacteristically, miss things I reach for, drop things, stumble, and bump into walls.

On tuesday, I receive the first shipment of self-injected drugs meant to slow the progression of the illness about 30%-50%, at a cost of about $10K/year (covered by insurance). I have chosen Avonex, based partly on the condescending videos, all evocative of feminine hygene commercials, but mostly on my perception that weekly intramuscular shots of interferon would by far more sustainable, with respect to my injection sites, than daily/alternating-daily/thrice-weekly subcutaneous injections.

I do not despair, though I do hope that I may think, see, and taste again soon. Damn.