Well, for my first
use Perl journal, and blog(-like), entry ever I thought I would have written something more perlish. Instead it's all just about me. Whatever, the main event in my life for the past week is that I've been to Candiolo for a preliminary visit with a doctor there, for the second phase of the terapy for my disease.
Now, to be explicit about it, I have a tumor. It's a multicentric osteosarcoma. Actually, it's the first time I mention it publicly, although I've spoken freely about it with friends and relatives.
I've now undergone six cycles of chemotherapic treatment with typical sarcoma drugs. However, chemotherapy is not enough for this kind of tumor. This is why I went to Candiolo, near Turin: because there's a centre there where they apply a cure that's not standard and that they're not doing in my city, Milan, notwithstanding the fact that it's the second biggest city of Italy, so they transferred me there.
Not only did I get a disease that strikes two or three persons in a million, not only in a form that occurs in less than 1% of cases thereof, not only does it affect the skeletal apparatus, whereas I'm a judoka, I even got it at 31, whereas it's a typical childhood tumor... for such an unusual disease the cure "must" be unusual too, in fact this second part I was referring to above is experimental, but of course they think it is appropriate for my case: indeed the doctor told me I will be about the one hundredth individual in the world taking it.
Said all this, the question that I've been repeating to my self every single day since the whole story began, on May 31st, remains: "why me?" And I still don't have an answer. So the feeling of an adverse fate knocking down on me is strong. OTOH I still consider myself to be lucky to live in a country where I have access to these advanced and supposedly expensive cures, whereas it's tormenting to think that the vast majority of this planet's population not only doesn't have access to cures for severe and rare diseases, but not even for light and common ones, and often is to die for them...